Going Gluten-FreeFebruary 17, 2012

Have You Heard This One?

If you’re living gluten free, chances are you’ve received interesting feedback about your special diet from friends, family, coworkers, acquaintances and dining companions. Even well-meaning relatives can chime in with choice statements like: Come on now. A little gluten won’t hurt you!

Sound familiar? Then you’ll enjoy this short video from the folks at Better Batter. Owner Naomi Poe pokes fun at the comments said all too often to those with celiac disease.

One crack food editor Beth Hillson has heard that’s not in the video: It’s safe for your diet—it’s all natural!  What have people said to you about your special diet?

 

Comments (12)

I get a lot of comments like on this video. When they ask me what do I eat, I tell them I eat REAL food and not all that processed junk that they eat. Many have now started noticing how many things have Gluten Free on the label. I am a bit more restricted then most. I also can not beef or pork because of allergic reactions and I have to really restrict my rice or corn because my body turns them to sugar. I used to bake a lot of breads, used to even give bread baking classes. Never could do the kneading as my hands would break out and bleed. Did not know I had DH. I have been experimenting with different kinds of flour and learning to convert recipes to suit my needs. I go out on business meetings to restaurants and one time one of the other vendors saw peanuts on the table and made a comment that she should move those away from me cause I had allergies. She was sweet to be concerned but I told her that not all allergies were to peanuts and that peanuts did not have gluten. I then gave her one of the flyers about Celiac and gluten intolerance. I have had to explain to people the difference between an allergy, an intolerance and sensitivity. I tell them that I am wheat allergic, gluten intolerant and gluten sensitive. After I have explained the differences, they then realize why I feel so bad so much and why I don't shake hands with people who are not in my Celiac group.

Posted by: ekwant | March 11, 2012 8:11 PM    Report this comment

This video didn't strike me as a pity party. To me, it was funny to hear all the ignorant things people said. I mean, presumably, one explained what gluten is & where it is usually found. The responses revealed people's lack of manners and lack of attention when you explained gluten to them in the first place. In short, you learn who your friends are - who's shallow, who's self-centered, & who really cares. (Yes, being gluten-free can actually do you a favor!)

My own "favorite" comment is "What's in those? Air?!" or "Are those 'Air' cookies?!" At first, that comment was was funny. You see, my kids and I have *multiple* food allergies, so when I had to bring treats to Girl Scouts or our homeschool coop, people were amazed that I could actually make decent cookies without wheat/gluten, dairy, eggs, corn, or cane sugar. (I used honey, among other things.) After I heard it the 3rd or 4th time, though, it wasn't funny anymore. It was just a reminder of how different my life is - how removed from the norm we are. Then I got over it. Hubby, in fact, EMBRACED it! He said, "Sweetheart, we are so far from the norm, we've fallen off the edge of the map!" (He revels in this "the road not taken" stuff!) And he's not allergic to anything! Well, he is MSG-sensitive, but I digress...

I have had similar experiences that others mentioned: relatives that don't get it & don't try; ditto for some health providers. My only regret is that I can't change or trade my "don't get it" relatives. But I can & did change the health providers! ;) (Remember, you gotta change what you can & accept what you can't & *know* which one's which!)

Posted by: KarateLady | March 8, 2012 6:10 PM    Report this comment

Janice: that is a shame about family members not understanding. Mine grill me on what is OK and not, and are very happy when they find a GF product for me. My husband is a chef, and has done wonders with GF cooking. I would advise your sister that it is best if you do your own shopping, and she can give you a gift card. I wish us all continued good luck with staying gluten free. Baker Debbie

Posted by: Baker Debbie | February 24, 2012 9:44 AM    Report this comment

At Christmas, my daughter received a tin of homemade cookies from one of her work associates. She pushed one in my face and said, "Here Mom, taste this one." I refused reminding her I had been gluten free for almost 2 years. She was astounded that I never cheat. She just doesn't get it! Neither does my sister who gave me flavored coffee for Christmas! I've quit saying anything to anyone about it. I don't go to the potluck dinners anymore, either. Everyone brings casseroles loaded with pasta, and by the time I get to my dish, it's gone!

Posted by: Janice B | February 23, 2012 5:12 PM    Report this comment

Elsie, I cannot believe that this nutritionist has a job!!! I would have raised holy heck with that hospital. That tops anything I have had happen. Did she get her degree from a box of Wheaties?? As for baking and cooking wheat-free gluten-free I know from the science behind baking that there are things that cannot be duplicated without that 'glue' in wheat (like baklava, or puff pastry - or a good beer!) A few months ago I found out I am lactose intolerent as well, so that has added to my angst, but I am learning more about lactose free products than I knew before.

Posted by: Baker Debbie | February 23, 2012 2:30 PM    Report this comment

I had a Hospital Nutritionist say "We DO have whole wheat bread, you know". Her second statement,"We do have some lovely bagels then". My hubby brought all my food from home for those 7 days. I have years of celiac experience, and have learned to not trust anything.

During that hospital stay healthcare professionals thanked me for insisting they call drug manufacturers to name ingredients. They said they were not aware of the seriousness of reactions to such small amounts...

Please, Baker Debbie, I don't want you to feel sorry or rail at the universe...or at least, don't do it for very long. Celliacs are not sick! We just have a big dose of our ancestor's genes making us pay attention to ourselves in today's gluten infested world. Apparently, gluten isn't good for anyone, but we are lucky enough to totally aware.

So, dig out those pots and pans, pastry boards and rolling pins and have at it! Experimenting gives us time to accept who we are.... and makes us realize that cooking and baking without gluten is not for sissies!!

Gluten free cooking can be mastered and produces some right fine healthy eating, so I like to give a thankful nod to the ol' ancestors for making me who I am, celiac and all.

Coolers, big and small, are under-rated. Celiacs have lots!! We should get discounts. :)

Posted by: Elsie C | February 23, 2012 1:43 PM    Report this comment

Pity Party - yep, that's what's going on. Thank you to everyone who has weighed in. Fellow sufferer's you have my sympathy.

Posted by: Baker Debbie | February 23, 2012 12:58 PM    Report this comment

I never knew I could be so angry at the universe! Pity party? Been there, done that! People saying inconsiderate or clueless things ? Yep!

Am I happy?!? Absolutely! When I get gluten I don't get to walk, at least not very far. I use a cane for several weeks, then I get to wait about a year and a half until I feel healthy again. It gets easier........ to focus on the benefits, it just takes time.

Do I still have pity parties?? On occasion, yes, and I may even wallow in it a bit. On those days there will be fresh flowers on my dining room table and probably new "pity plates"! I like to make what I can eat special so I get two (so gluten free hubby can join me) unique plates. fiesta ware, pier one imports, & bed, bath, and beyond. I have an interesting collection started. My kids and grandkids have their favorites.

By the way the worst things anyone ever said to me was: "I'm going into this restaurant to eat and you can suck air!" I'm still married to him, best to forgive and forget!! I was relieved when he was diagnosed with celiac tho ;)

Posted by: Lisa M | February 23, 2012 12:04 PM    Report this comment

I have done a lot of baking and experimenting with the gluten free flours, and have had many succesful results. There are a lot of good tasting finished products as well. Much more than when I was first diagnosed. What about eating out? To order eggs, and there are strange particles in there from other things the grill has cooked, even though you advised them. There are so many examples of ignorance and cross contamination out there, even in the places that have been trained, so they say. To order an omelet, and have it come out with two peices of buttered toast sitting on top - then have to sit there 20 minutes while everyone else eats and they cook you a new one. I could go on all day.

Posted by: Baker Debbie | February 23, 2012 12:02 PM    Report this comment

I am not celiac but I am allergic to gluten, hence gluten free. I have friends that are celiac, so we have a common understanding to the harm that gluten does to our bodies, albeit differently. Most of my friends that are not celiac do try to understand and accomodate. But you do have those that make those comments, word for word. If they are sincere and really want to understand, then explaining the health reasons helps. But as was said earlier be around positive people that care about you.

I am one who loves to cook. I love to bake. So I have started learning about working with gluten free flour blends. I have made cookies and cakes successfully, my grandchildren love them. I make my own bread, quite successfully as well, ie quick breads and yeast breads. I haven't ventured into the pastry department yet. That is my next venture. Many of those that are gluten free have been very generous in sharing their recipes and tips online. I do not feel left out when I go to a potluck, and those that are gluten free label their dishes as do I.

To be gluten free is an adjustment, but Baker Debbie, try experimenting with the gluten free flour blends and be the best gluten free pastry chef and provide delicious delights for those of us who would love to enjoy eating them again. I hope this helps.

Posted by: Elizabeth | February 23, 2012 11:33 AM    Report this comment

People who really care about you, will only want you to be the healthiest you can be. Walk away and surround your self with only positive people.

Posted by: citygirltravels | February 23, 2012 10:36 AM    Report this comment

these comments asre so true, so true. Life with celiac is very depressing for me as a trained pastry chef who LOVES food. Do other people with celiac feel sorry for themselves too? Get angry with the Universe for celiac? I tell myself to 'grow up' that there are worse things out there. Any suggestions?

Posted by: Baker Debbie | February 23, 2012 10:16 AM    Report this comment

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